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Active Consideration: Conceptualizing Patient-Provided Support for Spouse Caregivers in the Context of Prostate Cancer
Karen D. Fergus
York University, Toronto-Sunnybrook Regional Cancer Centre.
Ross E. Gray
Psychosocial & Behavioural Research Unit at the Toronto-Sunnybrook Regional Cancer Centre, Department of Public Health Sciences at the University of Toronto.
Margaret I. Fitch
Psychosocial and Behavioral Research Unit at Toronto-Sunnybrook Regional Cancer Centre
Manon Labrecque
Psychosocial & Behavioural Research Unit for the Canadian Breast Cancer Foundation Community Research Initiative.
Catherine Phillips
Princess Margaret Hospital in Toronto.
In this study, the authors examine the under-investigated topic of patient-provided support for spouse caregivers. Thirty-four men with prostate cancer and their female partners were interviewed separately three times: before the man’s radical prostatectomy, 8 to 10 weeks postsurgery, and 1 year postsurgery. The core category of active consideration encompassed 4 dimensions: easing spousal burden, keeping us up, maintaining connection, and considering spouse. Patient-provided support entails two overlapping tasks: minimizing the practical and emotional impact of the illness and tending to the caregiver’s social-emotional needs. A theory expounding on the double bind of being both a patient and an agent in light of masculine socialization practices is articulated and brought to bear on the phenomenon of patient-provided support.
Qualitative Health Research, Vol. 12, No. 4,
492-514 (2002)
DOI: 10.1177/104973202129120034
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