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The Structure of Everyday Self-Care Decision Making in Chronic Illness

University of British Columbia, Vancouver, Canada

Barbara Paterson

University of British Columbia, Vancouver, Canada

Cynthia Russell

University of Tennessee Health Science Center, Memphis

As health care reform strategists increasingly recognize the critically important potential of effective everyday self-care decision making for reducing the burden of illness and the strain on health service systems, wemust find ways to understand and support it. In this study, the authors investigate persons with expertise in self-care management of type 2 diabetes,HIV/AIDS, and multiple sclerosis to understand how everyday self-care decision making is learned and experienced. They used interview, think-aloud, and focus groups to construct an account of how persons affected by these chronic diseases make decisions in relation to the choices in their everyday lives and learn to manage the untoward effects of these conditions accordingto their unique contexts and values. The findings form a conceptual foundation for ongoing inquiry into this complex phenomenon and provide insights that might assist clinicians to understand more fully the responses and attitudes of those they serve.

Key Words: self-care • decision making • chronic illness • interpretive description

Qualitative Health Research, Vol. 13, No. 10, 1337-1352 (2003)
DOI: 10.1177/1049732303258039


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