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Qualitative Health Research
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*Coping with Chronic Illness
*Disabilities
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Experiencing Chronic Illness: Cocreating New Understandings

Pamela M. Ironside

Martha Scheckel

Constance Wessels

Mary E. Bailey

Sharon Powers

Deana K. Seeley

This study was conducted as part of a research course in which new partnerships with area citizens and community-driven programs of research were developed. Working together, the teachers, students, and citizens were able to document their practical knowledge through conducting a study of the lived experiences of chronic illness using Heideggerian hermeneutical phenomenology. The pattern, Experiencing Chronic Illness: Cocreating New Understanding, and three themes emerged during the analysis of the data (a) focusing on functional status doesn't adequately account for the experience of chronic illness, (b) decentering the focus on the treatment of symptoms makes way for equally important discussions of meaning making in the context of chronic illness, and (c) the objectified language of healthcare covers over how chronic illness is experienced.

Key Words: chronic illness • community-driven research • hermeneutical phenomenology • narrative pedagogy • hermeneutics

Qualitative Health Research, Vol. 13, No. 2, 171-183 (2003)
DOI: 10.1177/1049732302239597
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