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Qualitative Health Research
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Expressions of Loss of Adulthood in the Narratives of People with Colorectal Cancer

Linda Rozmovits

DIPEx, Department of Primary Health Care, University of Oxford, United Kingdom

Sue Ziebland

DIPEx, Department of Primary Health Care, University of Oxford, United Kingdom

The diagnosis and treatment of colorectal cancer entail detailed discussions of bodily functions, invasive procedures, and a reorientation of life around bowel habit. Furthermore, people with stomas undergo a second experience of toilet training in adulthood. For these reasons, colorectal cancer is sometimes considered an embarrassing disease. Narrative interviews with colorectal cancer patients indicate the inadequacy of the concept of embarrassment in describing the loss of dignity, privacy, independence, and sexual confidence as well as a compromised ability to work, travel, and socialize. The link between bowel control and the constitution of adult identity must be acknowledged if health professionals and carers are to offer the most appropriate forms of information and support to people affected by colorectal cancer.

Key Words: colorectal cancer • bowel cancer • in-depth interviews • fecal incontinence • stoma

Qualitative Health Research, Vol. 14, No. 2, 187-203 (2004)
DOI: 10.1177/1049732303260874


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Patients with colorectal cancer expressed a loss of adulthood related to a loss of professional and sexual identity, dignity, privacy, independence, and ability to socialise
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