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Fathers’ Experience of Parenting a Child With Juvenile Rheumatoid ArthritisThe Hospital for Sick Children, Toronto, Canada The author examined the experience of fathers who have a child with juvenile rheumatoid arthritis (JRA). He used grounded theory methodology, in which 22 fathers participated in semistructured interviews, and developed a substantive theory of fathers’ experience that addresses the impact of their child’s JRA, their adaptational responses, and the meanings they associated with their experiences. Fathers were profoundly affected, perceived their child’s condition as a catalyst for meaningful involvement, experienced many emotions, and sought to adopt a positive approach to making sense of their child’s condition. Fathers’efforts to be strong for others resulted in an overreliance on self-support strategies, particularly during periods of high stress. Given the nature of fathers’ experience and the extent of their involvement, greater attention by health care practitioners to fathers’ adaptation is indicated.
Key Words: fatherhood • parenting • childhood chronic illness • adaptation • grounded theory • juvenile rheumatoid arthritis
Qualitative Health Research, Vol. 14, No. 4,
526-545 (2004) This article has been cited by other articles:
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