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Qualitative Health Research
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Communication Between People With Schizophrenia and Their Medical Professionals: A Participatory Research Project

Barbara Schneider

Faculty of Communication and Culture, University of Calgary, Alberta, Canada

Hannah Scissons

Faculty of Communication and Culture at the University of Calgary, Calgary, Alberta, Canada

Laurie Arney

Adult Unsung Heroes Support Group for People with Schizophrenia Run by the Schizophrenia Society of Alberta, Calgary Chapter

George Benson

Adult Unsung Heroes Support Group for People with Schizophrenia Run by the Schizophrenia Society of Alberta, Calgary Chapter

Jeff Derry

Adult Unsung Heroes Support Group for People with Schizophrenia Run by the Schizophrenia Society of Alberta, Calgary Chapter

Ken Lucas

Adult Unsung Heroes Support Group for People with Schizophrenia Run by the Schizophrenia Society of Alberta, Calgary Chapter

Michele Misurelli

Adult Unsung Heroes Support Group for People with Schizophrenia Run by the Schizophrenia Society of Alberta, Calgary Chapter

Dana Nickerson

Adult Unsung Heroes Support Group for People with Schizophrenia Run by the Schizophrenia Society of Alberta, Calgary Chapter

Mark Sunderland

Adult Unsung Heroes Support Group for People with Schizophrenia Run by the Schizophrenia Society of Alberta, Calgary Chapter

The authors describe a participatory research project undertaken by a group of people with schizophrenia under the guidance of a university researcher. Participatory research involves members of the research group in meaningful participation in all stages of the research process. In this study, group members chose the topic—experiences with medical professionals—and method of data collection—in-depth interviews that they conducted with each other. They developed and performed a readers’ theater presentation of the results and their recommendations for how they would like to be treated by medical professionals. The results indicate that good communication with medical professionals is essential to people with schizophrenia; it helps them accept the fact that they are ill and learn to live with the illness. The research offered a transformative experience to group members and is contributing to change in the practice of health care for people with severe mental illnesses.

Key Words: communication • doctors • mental health professionals • schizophrenia • participatory reserch

Qualitative Health Research, Vol. 14, No. 4, 562-577 (2004)
DOI: 10.1177/1049732303262423
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