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Qualitative Health Research
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Making Sense of Traumatic Experiences: Telling Your Life With Fragile X Syndrome

Maria I. Medved

New School University, New York

Jens Brockmeier

New School University, New York, Free University Berlin

The discourse of individuals with fragile X syndrome has been described as fragmented, tangential, and associatively connected, resulting in autobiographical narratives that are incoherent and difficult to understand. In this article, the authors discuss the case of an adolescent female with moderate mental retardation due to fragile X syndrome. The analysis of her autobiographical stories, rather than being primarily reflective of cognitive impoverishment, reveals a different—narrative—mode of thought. The authors present and examine some of her narratives in terms of their specific functions: communication, coherence, exploration, distancing, and evaluation. Their findings suggest that narrative analysis can be an important complement to traditional neuropsychological assessment.

Key Words: fragile x syndrome • narrative • mental retardation • trauma • assessment

Qualitative Health Research, Vol. 14, No. 6, 741-759 (2004)
DOI: 10.1177/1049732304265972
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This article has been cited by other articles:


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