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DOI: 10.1177/1049732304265973 The Dyspnea-Anxiety-Dyspnea CycleCOPD Patients Stories of Breathlessness: "Its Scary /When you Cant Breathe"Laurentian University, Sudbury, Ontario, Canada Dyspnea, the major symptom associated with acute exacerbation events of chronic obstructive pulmonary disease (COPD), is a subjective experience. Extensive research has been done on the pathophysiology and affective components of dyspnea; however, the precise physical mechanism of breathlessness remains elusive. One purpose of this narrative research was to explore the affective component of dyspnea/anxiety as described by patients living with COPD characterized by acute illness events. Ten patient-family units participated in interviews during an acute episode of the patients lung disease. They described their understanding of acute dyspnea as an experience inextricably related to anxiety and emotional functioning. Their stories suggest that given the absence of clear objective measures of illness severity, patient-reported anxiety might provide an important marker during acute exacerbation events. Health care providers need to recognize anxiety as an important and potentially measurable sign of invisible dyspnea for end-stage patients with COPD in acute respiratory distress.
Key Words: dyspnea anxiety COPD, AECOPD narrative analysis ethnography discourse analysis
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