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Qualitative Health Research
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*Assisted Living
*Caregivers
*Palliative Care
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Palliative Care, Care for Life: A Study of the Specificity of Residential Palliative Care

Nancy Cannaerts

Palliative Support Team, University Hospitals Leuven, Belgium

Bernadette Dierckx de Casterlé

Catholic University Leuven, Belgium

Mieke Grypdonck

University of Ghent, Belgium, University of Utrecht, the Netherlands

In this study, the authors describe the concept of palliative care as applied in a palliative care unit. They conducted in-depth interviews with 8 patients, 9 relatives, and 24 caregivers from two residential palliative care units. Observation of the care and of team meetings and analysis of patient records provided additional data. Palliative care involves a specific concept of care, the central focus of which is life. This is realized by two strategies. The first is to create space to live by diverting attention from the sick body, moving the illness into the background. The second is to fill the space as meaningfully as possible, so that patients can enjoy life even in the face of death. The quality of the caregiving process in palliative care is determined by a range of conditions and processes that reflect its complexity.

Key Words: palliative care • specificity of palliative care • palliative care concept

Qualitative Health Research, Vol. 14, No. 6, 816-835 (2004)
DOI: 10.1177/1049732304265977


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