Advanced Search

Journal Navigation

Journal Home

Subscriptions

Archive

Contact Us

Table of Contents

CiteULike is a free service for managing and discovering scholarly references - click here to get started.

Sign In to gain access to subscriptions and/or personal tools.
Qualitative Health Research
This Article
Right arrow Full Text (PDF)
Right arrow References
Right arrow Alert me when this article is cited
Right arrow Alert me if a correction is posted
Right arrow Citation Map
Services
Right arrow Email this article to a friend
Right arrow Similar articles in this journal
Right arrow Similar articles in PubMed
Right arrow Alert me to new issues of the journal
Right arrow Add to Saved Citations
Right arrow Download to citation manager
Right arrowRequest Permissions
Right arrow Request Reprints
Right arrow Add to My Marked Citations
Citing Articles
Right arrow Citing Articles via HighWire
Right arrow Citing Articles via Web of Science (10)
Right arrow Citing Articles via Google Scholar
Right arrow Citing Articles via Scopus
Google Scholar
Right arrow Articles by d'Agincourt-Canning, L.
Right arrow Search for Related Content
PubMed
Right arrow PubMed Citation
Right arrow Articles by d'Agincourt-Canning, L.
Right arrowPubmed/NCBI databases
Medline Plus Health Information
*Breast Cancer
*Genetic Testing
*Ovarian Cancer
Social Bookmarking
Add to CiteULike   Add to Complore   Add to Connotea   Add to Del.icio.us   Add to Digg   Add to Reddit   Add to Technorati   Add to Twitter  
What's this?

Genetic Testing for Hereditary Breast and Ovarian Cancer: Responsibility and Choice

Lori d'Agincourt-Canning

BC Cancer Agency, Hereditary Cancer Program.

Genetic testing for hereditary breast-ovarian cancer has become an important part of clinical genetics practice. Although considerable work has focused on the psychological impact of this technology, there has been little research into the moral implications of genetic information on hereditary cancer families. In this article, the author examines moral issues related to individuals' decisions to seek or decline testing. In-depth interviews with 53 participants make up the core of the research. Analysis of participants' accounts illustrates how the decision to be tested (or not) interconnects with moral agency and aspects of self (embodied, familial-relational, and civic self). The findings form the foundation for inquiry into conceptualization of moral responsibility, autonomy, and choice. They also provide insight that might assist clinicians to understand more fully the needs and responses of those who seek genetic testing for hereditary breast-ovarian cancer.

Key Words: moral agency • responsibility • choice • autonomy • genetic testing • hereditary cancer

Qualitative Health Research, Vol. 16, No. 1, 97-118 (2006)
DOI: 10.1177/1049732305284002
Add to CiteULike CiteULike   Add to Complore Complore   Add to Connotea Connotea   Add to Del.icio.us Del.icio.us   Add to Digg Digg   Add to Reddit Reddit   Add to Technorati Technorati   Add to Twitter Twitter    What's this?


This article has been cited by other articles:


Home page
 Health Education JournalHome page
N. Johnson and V. Dickson-Swift
`It usually happens in older women': Young women's perceptions about breast cancer
Health Education Journal, December 1, 2008; 67(4): 243 - 257.
[Abstract] [PDF]

Home page
 Qual Health ResHome page
A. Chapple, S. Ziebland, P. Hewitson, and A. McPherson
Why Men in the United Kingdom Still Want the Prostate Specific Antigen Test
Qual Health Res, January 1, 2008; 18(1): 56 - 64.
[Abstract] [PDF]