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Qualitative Health Research
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Perceived Benefits and Difficulties Experienced in a Mutual Support Group for Family Carers of People With Schizophrenia

Wai-Tong Chien

Nethersole School of Nursing, Faculty of Medicine, Chinese University of Hong Kong, Hong Kong SAR, China

Ian Norman

King's College London, Division of Health & Social Care Research, United Kingdom

David R. Thompson

Nethersole School of Nursing, Faculty of Medicine, Chinese University of Hong Kong, Hong Kong SAR, China

In this qualitative study, the authors explore from the participants' perspective the benefits and difficulties experienced by participants in a mutual support group for Chinese family carers of patients with schizophrenia in Hong Kong. Thirty family carers and 10 patients who had participated in a 12-session mutual support group were interviewed, and the 12 group sessions were audiotaped for content analysis. Three main themes emerged from the data: (a) positive personal changes attributed to group participation, which included enhanced self-identity and acceptance of the caregiving role, increased knowledge of the illness, and adoption of new coping skills; (b) positive characteristics of the mutual support group, including the explicit group ideology and consensus, perceived social climate of the group, and informational support and empowerment; and (c) major inhibitors of group development, specifically low or irregular group attendance, negative pressure from dominant members, and overexpression of intense and negative feelings. These findings contribute to our understanding of the therapeutic components and limitations of mutual support groups for family carers.

Key Words: family carers • schizophrenia • perceived benefits • mutual support group • qualitative research

Qualitative Health Research, Vol. 16, No. 7, 962-981 (2006)
DOI: 10.1177/1049732306290140
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[Abstract] [PDF]