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Qualitative Health Research
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Marked by Visibility of Psoriasis in Everyday Life

Margaretha Uttjek

Umeå University, Umeå, Sweden

Lennart Nygren

Umeå University, Umeå, Sweden

Berndt Stenberg

Umeå University, Umeå, Sweden

Mona Dufåker

Umeå University, Umeå, Sweden

In this study, the authors aimed at a sociological approach to the individual’s everyday life with psoriasis and to this end conducted qualitative interviews with 18 persons from a county in northern Sweden. The most difficult aspects of living with psoriasis were being marked by the visibility of psoriasis, especially in the younger ages, and the visibility of joint changes. Therefore, those with both rashes and joint changes felt marked and discredited in a twofold way. Commonly used coping strategies were routinization of both the treatment and the adjustment to the marking process, and acceptance, and these strategies developed with age. Most participants experienced a good quality of life but still could find nothing positive about psoriasis. The authors suggest efforts toward increased awareness among health care professionals of the marking process and future qualitative studies about experiences of psoriasis during adolescence.

Key Words: coping • joint symptoms • onset of psoriasis • routinization • stigma • visibility

Qualitative Health Research, Vol. 17, No. 3, 364-372 (2007)
DOI: 10.1177/1049732306297674
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