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Qualitative Health Research
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*Eating Disorders
*Esophageal Cancer
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Remapping the Body: Learning to Eat Again After Surgery for Esophageal Cancer

David Wainwright

University of Bath, United Kingdom

Jenny L. Donovan

University of Bristol, United Kingdom

Vas Kavadas

Bristol Royal Infirmary, United Kingdom

Helen Cramer

University of Bristol, United Kingdom

Jane M. Blazeby

University of Bristol and Bristol Royal Infirmary, United Kingdom

Surgery for esophageal cancer offers the hope of cure but might impair quality of life. The operation removes tumors obstructing the esophagus but frequently leaves patients with eating difficulties, leading to weight loss. Maintaining or increasing body weight is important to many patients, both as a means of returning to "normal" and as a means of rejecting the identity of the terminal cancer patient, but surgery radically alters embodied sensations of hunger, satiety, swallowing, taste, and smell, rendering the previously taken-for-granted experience of eating unfamiliar and alien. Successful recovery depends on patients' learning how to eat again. This entails familiarization with physiological changes but also coming to terms with the social consequences of spoiled identity. The authors report findings from in-depth interviews with 11 esophageal cancer patients, documenting their experiences as they struggle to achieve a process of adaptation that is at once physiological, psychological, and social.

Key Words: cancer • rehabilitation • eating disorder • esophagectomy

Qualitative Health Research, Vol. 17, No. 6, 759-771 (2007)
DOI: 10.1177/1049732307302021
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