Advanced Search

Journal Navigation

Journal Home

Subscriptions

Archive

Contact Us

Table of Contents

CiteULike is a free service for managing and discovering scholarly references - click here to get started.

Sign In to gain access to subscriptions and/or personal tools.
Qualitative Health Research
This Article
Right arrow Full Text (PDF)
Right arrow References
Right arrow Alert me when this article is cited
Right arrow Alert me if a correction is posted
Right arrow Citation Map
Services
Right arrow Email this article to a friend
Right arrow Similar articles in this journal
Right arrow Similar articles in Web of Science
Right arrow Similar articles in PubMed
Right arrow Alert me to new issues of the journal
Right arrow Add to Saved Citations
Right arrow Download to citation manager
Right arrowRequest Permissions
Right arrow Request Reprints
Right arrow Add to My Marked Citations
Citing Articles
Right arrow Citing Articles via HighWire
Right arrow Citing Articles via Web of Science (2)
Right arrow Citing Articles via Google Scholar
Right arrow Citing Articles via Scopus
Google Scholar
Right arrow Articles by Guell, C.
Right arrow Search for Related Content
PubMed
Right arrow PubMed Citation
Right arrow Articles by Guell, C.
Right arrowPubmed/NCBI databases
Medline Plus Health Information
*Joint Disorders
*Juvenile Rheumatoid Arthritis
Social Bookmarking
 Add to CiteULike   Add to Complore   Add to Connotea   Add to Del.icio.us   Add to Digg   Add to Reddit   Add to Technorati   Add to Twitter  
What's this?

Painful Childhood: Children Living With Juvenile Arthritis

Cornelia Guell

University of Edinburgh, United Kingdom

In this article the author explores the everyday life and coping of children living with juvenile arthritis. The author considered the children as experts on their illness who can give valuable insights into illness management from a patient's perspective. This is in contrast to most research, which lets others, such as caregivers, speak in the place of children. She used an ethnographic approach with open-ended interviews and participant observation to capture the complexity of chronic illness's impact on everyday life. Results of the study indicate that living with juvenile arthritis entails a constant taking control over one's body and achieving normality in life. These children must negotiate between their protected status of being a sick child and their immense responsibility in illness management. The author suggests that existing research on adult chronic illness has only limited relevance to understanding children's illness experience and that further research with children is needed.

Key Words: chronic illness • children • ethnographic research

Qualitative Health Research, Vol. 17, No. 7, 884-892 (2007)
DOI: 10.1177/1049732307305883


Add to CiteULike CiteULike   Add to Complore Complore   Add to Connotea Connotea   Add to Del.icio.us Del.icio.us   Add to Digg Digg   Add to Reddit Reddit   Add to Technorati Technorati   Add to Twitter Twitter    What's this?


This article has been cited by other articles:


Home page
Qual Health ResHome page
C. Olsson, P. Lyon, A. Hornell, A. Ivarsson, and Y. M. Sydner
Food That Makes You Different: The Stigma Experienced by Adolescents With Celiac Disease
Qual Health Res, July 1, 2009; 19(7): 976 - 984.
[Abstract] [PDF]


Home page
Qual Health ResHome page
J. L. P. Protudjer, A. L. Kozyrskyj, A. B. Becker, and G. Marchessault
Normalization Strategies of Children With Asthma
Qual Health Res, January 1, 2009; 19(1): 94 - 104.
[Abstract] [PDF]


Home page
Qual Health ResHome page
E. Giarelli, B. A. Bernhardt, R. Mack, and R. E. Pyeritz
Adolescents' Transition to Self-Management of a Chronic Genetic Disorder
Qual Health Res, April 1, 2008; 18(4): 441 - 457.
[Abstract] [PDF]