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Qualitative Health Research
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*Epilepsy
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Living With Epilepsy: Ordinary People Coping With Extraordinary Situations

Hanna Admi

University of Haifa

Beatrice Shaham

University of Haifa

This replicated study explores the ordinary people theory generated in the original research among American youth with cystic fibrosis through the experience of Israeli youth with epilepsy. The authors used the qualitative life history method in a sample of 14 adolescents and young adults with epilepsy. They employed the constant comparative method of analysis to analyze the data collected from the in-depth interviews. The results show that epilepsy was not central to the participants' everyday lives. Their perceptions of the disease followed developmental stages. The authors found that coping methods were adaptive and took into account social stigma and practical outcomes. This study provides a positive and normalcy perspective of exploring the lifestyle of people with chronic diseases and disabilities as opposed to deficit models. It adds to the trustworthiness of the model's cross-cultural applicability through its use in a different context among a population with a different diagnosis.

Key Words: chronic disease • epilepsy • stigma • adolescence • life histories

Qualitative Health Research, Vol. 17, No. 9, 1178-1187 (2007)
DOI: 10.1177/1049732307307548
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C. Olsson, P. Lyon, A. Hornell, A. Ivarsson, and Y. M. Sydner
Food That Makes You Different: The Stigma Experienced by Adolescents With Celiac Disease
Qual Health Res, July 1, 2009; 19(7): 976 - 984.
[Abstract] [PDF]