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The Diabetes Educator

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Qualitative Health Research
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Illness Meanings of AIDS Among Women With HIV: Merging Immunology and Life Experience

Alison Scott

Georgia Southern University, Statesboro, Georgia, USA

Little attention has been paid to illness meanings held by those with HIV in the presence of highly active antiretroviral therapy (HAART). This article illustrates how elucidating illness meanings might aid our understanding of HAART adherence and other important health behaviors. Using multiple qualitative methods, including in-depth interviews, free lists, and drawings, I explore meanings surrounding the concept of AIDS among women with HIV in New Orleans, Louisiana. Illness meanings of AIDS reflect the women's negotiation of physical, social, and emotional threats posed by HIV. HIV-positive women displace death and stigma away from an HIV diagnosis to an AIDS diagnosis, creating a sense of safety and normalcy for themselves. Women with AIDS diagnoses, however, struggle to construct illness meanings of AIDS that resist its association with ostracism and death. Drawings produced by the women provide rich insights and illustrate the value of drawings as a visual method in exploring illness meanings.

Key Words: adherence • HIV/AIDS • minorities • stigma • visual methods • young women

Qualitative Health Research, Vol. 19, No. 4, 454-465 (2009)
DOI: 10.1177/1049732309332707
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