|
Sign In to gain access to subscriptions and/or personal tools.
|
Sense Malking in Multiple Sclerosis: The Information Needs of People during an Acute Exacerbation
Lynda M. Baker
Library and Information Science Program, Wayne State University, Detroit, Michigan, LBaker{at}cms.cc.wayne.edu
Chronic illness has been described as a major disruption in one's everyday life. Studies have shown that people seek and use information to help them cope with their disease. Using the micro-moment time-line interview technique, this study focused on the information needs of people with multiple sclerosis (MS) who had recently experienced an exacerbation of their disease. The results revealed gaps in people's knowledge about physical symptoms they were experiencing, emotions they felt, and drugs. Various sources of and barriers to obtaining information were identified. The results suggest that health professionals need to be aware of the continuing need for relevant, current, and specific information to help people with MS retain their independence and to empower them to make informed decisions.
Qualitative Health Research, Vol. 8, No. 1,
106-120 (1998)
DOI: 10.1177/104973239800800108

CiteULike Complore Connotea Del.icio.us Digg Reddit Technorati Twitter What's this?
This article has been cited by other articles:

|
 |

|
 |
 
K. I. Pakenham
Making Sense of Illness or Disability: The Nature of Sense Making in Multiple Sclerosis (MS)
J Health Psychol,
January 1, 2008;
13(1):
93 - 105.
[Abstract]
[PDF]
|
 |
|

|
 |

|
 |
 
A. E. Kurz, N. Saint-Louis, J. P. Burke, and M. G. Stineman
Exploring the Personal Reality of Disability and Recovery: A Tool for Empowering the Rehabilitation Process
Qual Health Res,
January 1, 2008;
18(1):
90 - 105.
[Abstract]
[PDF]
|
 |
|

|
 |

|
 |
 
K. Lode, J.P. Larsen, E. Bru, G. Klevan, K.M. Myhr, and H. Nyland
Patient information and coping styles in multiple sclerosis
Multiple Sclerosis,
July 1, 2007;
13(6):
792 - 799.
[Abstract]
[PDF]
|
 |
|

|
 |

|
 |
 
J Greenhalgh, H Ford, A F Long, and K Hurst
The MS Symptom and Impact Diary (MSSID): psychometric evaluation of a new instrument to measure the day to day impact of multiple sclerosis
J. Neurol. Neurosurg. Psychiatry,
April 1, 2004;
75(4):
577 - 582.
[Abstract]
[Full Text]
[PDF]
|
 |
|

|
 |

|
 |
 
S. Thorne, A. Con, L. McGuinness, G. McPherson, and S. R. Harris
Health Care Communication Issues in Multiple Sclerosis: An Interpretive Description
Qual Health Res,
January 1, 2004;
14(1):
5 - 22.
[Abstract]
[PDF]
|
 |
|
|
|