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Patients' Perceptions of their Experiences with ESRD and Hemodialysis Treatment

Division of Nephrology at the Health Sciences Centre, St. John's, Newfoundland

Christine Y. Way

School of Nursing at Memorial University, St. John's, Newfoundland

Thomas A. Hutchinson

Division of Nephrology at McGill University, Montreal, Quebec

Brendan J. Barrett

Division of Nephrology at the Health Sciences Centre, Memorial University, St. John's, Newfoundland

Patrick S. Parfrey

Division of Nephrology at the Health Sciences Centre, St. John's, Newfoundland

A grounded theory methodology was used to explore patients' experiences with end-stage renal disease (ESRD) and hemodialysis. The emerging theory suggests that a "new sense of self" is an emotional/psychological state that fluctuates with the evolving meanings of ill-ness and treatment and perceived quality of supports. The findings indicate that when con-fronted with this new way of being in the world, the individual becomes cognizant of an uncertain future, continued dependence on life-sustaining technology and the expertise of health care providers, and the demands on and sacrifices incurred by significant others. All aspects of patients' experiences with ESRD and hemodialysis treatment must be considered if health care providers are tofacilitate positive health outcomes.

Qualitative Health Research, Vol. 8, No. 6, 764-783 (1998)
DOI: 10.1177/104973239800800604


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