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Qualitative Health Research
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Community Formation and Community Roles among Persons with Alzheimer’s Disease: A Comparative Study of Experiences in a Residential Alzheimer’s Facility and a Traditional Nursing Home

Carol L. McAllister

University of Pittsburgh

Myrna A. Silverman

University of Pittsburgh’s Graduate School of Public Health, University of Pittsburgh’s Medical Center Health System’s Alzheimer’s Disease Research Center

Based on an ethnographic study in a residential Alzheimer’s facility and a traditional nursing home, this article discusses the process of community formation and the maintenance of community roles among individuals suffering from dementia in institutional settings. These include: therapeutic programming that promotes resident independence and choice; flexible and person-centered staff roles; and a physical environment that facilitates social interaction, autonomy, and participation in the activities of daily living. In contrast, institutional programs that are regimented, that follow a medical rather than a social model of care, and that take place in physical environments that have limited options may discourage resident interaction and social bonding, thus inhibiting community formation. Although Alzheimer’s disease and other forms of dementia may create difficulties for the realization of community and community roles among institutionalized people, more significant are the environmental conditions in which such individuals live and the programs designed for their care.

Qualitative Health Research, Vol. 9, No. 1, 65-85 (1999)
DOI: 10.1177/104973299129121703
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