Qualitative Health Research

 

Advanced Search

Journal Navigation

Journal Home

Subscriptions

Archive

Contact Us

Table of Contents

The Diabetes Educator

Click here for free access to the SAGE eReference platform!

Sign In to gain access to subscriptions and/or personal tools.
This Article
Right arrow Abstract Freely available
Right arrow Free Full Text (Free PDF) Free
Right arrow Alert me when this article is cited
Right arrow Alert me if a correction is posted
Right arrow Citation Map
Services
Right arrow Email this article to a friend
Right arrow Similar articles in this journal
Right arrow Similar articles in ISI Web of Science
Right arrow Similar articles in PubMed
Right arrow Alert me to new issues of the journal
Right arrow Add to Saved Citations
Right arrow Download to citation manager
Right arrowRequest Permissions
Right arrow Request Reprints
Right arrow Add to My Marked Citations
Citing Articles
Right arrow Citing Articles via HighWire
Right arrow Citing Articles via ISI Web of Science (2)
Right arrow Citing Articles via Google Scholar
Google Scholar
Right arrow Articles by Peel, E.
Right arrow Articles by Lawton, J.
Right arrow Search for Related Content
PubMed
Right arrow PubMed Citation
Right arrow Articles by Peel, E.
Right arrow Articles by Lawton, J.
Social Bookmarking
 Add to CiteULike   Add to Connotea   Add to Del.icio.us   Add to Digg   Add to Reddit   Add to Technorati  
What's this?
Qualitative Health Research, Vol. 16, No. 10, 1335-1349 (2006)
DOI: 10.1177/1049732306294511

"It’s No Skin off My Nose": Why People Take Part in Qualitative Research

Elizabeth Peel

School of Life and Health Sciences, Aston University, United Kingdom

Odette Parry

North East Wales Institute of Higher Education (NEWI), United Kingdom

Margaret Douglas

Lothian NHS Board, United Kingdom

Julia Lawton

Research Unit in Health, Behaviour and Change (RUHBC), University of Edinburgh, United Kingdom

In this article, the authors analyze participants’ accounts of why they took part in a repeat-interview study exploring newly diagnosed patients’ perceptions of diabetes service provision in Lothian, Scotland. The study involved three semistructured in-depth interviews with each patient (N = 40), which spanned a year. The authors provide a thematic discursive analysis of responses to the question, Can I ask you what made you decide to part in the study and why you’ve stayed involved over the past year? The main themes are (a) recruitment within health contexts ("the nurse said it would help"), (b) altruism ("if it can help somebody"), (c) qualitative research being seen as inherently innocuous ("nothing to lose"), and (d) therapeutic aspects of interviewing ("getting it off my chest"). The analysis contributes both to the qualitative literature about generic research participation and to a germinal literature exploring qualitative health research participation.

Key Words: diabetes • repeat interviews • qualitative research • research participation

References

  • Boyatzis, R. E. (1998). Transforming qualitative information: Thematic analysis and code development. Thousand Oaks, CA: Sage.
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77-101.[CrossRef]
  • Dyregrov, K. (2004). Bereaved parents’ experience of research participation. Social Science and Medicine, 58, 391-400.
  • Edwards, S. J. L., Lilford, R. J., & Hewison, J. (1998). The ethics of randomised controlled trials from the perspectives of patients, the public, and healthcare professionals. British Medical Journal, 317, 1209-1212.[Free Full Text]
  • Ellis, P. M. (2000). Attitudes towards and participation in randomised clinical trials in oncology: A review of the literature. Annals of Oncology, 11, 939-945.[Abstract/Free Full Text]
  • Featherstone, K., & Donovan, J. L. (1998). Random allocation or allocation at random?: Patients’ perspectives of participation in a randomised controlled trial. British Medical Journal, 317, 1177-1180.[Abstract/Free Full Text]
  • Finch, J. (1984). It’s great to have someone to talk to: The ethics and politics of interviewing women. In C. Bell & H. Roberts (Eds.), Social researching (pp. 70-87). London: RKP.
  • Grinyer, A. (2004). The narrative correspondence method: What a follow-up study can tell us about the longer term effect on participants in emotionally demanding research. Qualitative Health Research, 14, 1326-1341.[Abstract]
  • Holstein, J., & Gubrium, J. (1995). The active interview. Thousand Oaks, CA: Sage.
  • Holstein, J., & Gubrium, J. (1997). Active interviewing. In D. Silverman (Ed.), Qualitative research (pp. 113-129). London: Sage.
  • Huizinga, G. A., Sleijfer, D. T., van de Wiel, H. B. M., & van der Graaf, W. T. A. (1999). Decision-making process in patients before entering phase III cancer clinical trials: A pilot study. Cancer Nursing, 22(2), 119-125.[CrossRef][ISI][Medline] [Order article via Infotrieve]
  • Kvale, S. (1996). InterViews: An introduction to qualitative research interviewing. Thousand Oaks, CA: Sage.
  • Lawton, J., Fox, A., Fox, C., & Kinmonth, A. L. (2003). Participating in the United Kingdom prospective diabetes study (UKDPS): A qualitative study of patients’ experiences. British Journal of General Practice, 53, 394-398.[ISI][Medline] [Order article via Infotrieve]
  • Lawton, J., Parry, O., Peel, E., & Douglas, M. (2005). Diabetes service provision: A qualitative study of newly diagnosed type 2 diabetes patients’ preferences and views. Diabetic Medicine, 22, 1246-1251.[CrossRef][ISI][Medline] [Order article via Infotrieve]
  • Lawton, J., Peel, E., Parry, O., Araoz, G., & Douglas, M. (2005). Lay perceptions of type 2 diabetes in Scotland: Bringing health services back in. Social Science & Medicine, 60(7), 1423-1435.
  • Lawton, J., Peel, E., Douglas, M., & Parry, O. (2004). "Urine testing is a waste of time": Qualitative study of patients’ experiences and views about glucose self-monitoring technologies. Diabetic Medicine, 21, 1045-1048.[CrossRef][ISI][Medline] [Order article via Infotrieve]
  • Mathieson, C. M. (1999). Interviewing the ill and the healthy. In M. Murray & K. Chamberlain (Eds.), Qualitative health psychology: Theories and methods. (pp. 117-133). London: Sage.
  • Mattson, M. E., Curb, J. D., McArdle, R., & the AMIS and BHAT Research Groups. (1985). Participation in a clinical trial: The patients’ point of view. Controlled Clinical Trials, 6, 156-167.[CrossRef][ISI][Medline] [Order article via Infotrieve]
  • McAllister, M. (2005). On the joys and sorrows of recruiting hospital patients. In N. Hallowell, J. Lawton, & S. Gregory (Eds.), Reflections on research: The realities of doing research in the social sciences. (pp. 67-69). Maidenhead, UK: Open University Press.
  • Nightingale, D. J., & Cromby, J. (1999). Social constructionist psychology: A critical analysis of theory and practice. Buckingham, UK: Open University Press.
  • Parry, O., Peel, E., Douglas, M., & Lawton, J. (2004). Patients in waiting: A qualitative study of type 2 diabetes patients’ perceptions of diagnosis. Family Practice, 21(2), 131-136.[Abstract/Free Full Text]
  • Parry, O., Peel, E., Douglas, M., & Lawton, J. (2006). Issues of cause and control in patients’ accounts of type 2 diabetes. Health Education Research, 21(1), 97-107.[Abstract/Free Full Text]
  • Peel, E., Parry, O., Douglas M., & Lawton J. (2004a). Blood glucose self-monitoring in non-insulin treated type 2 diabetes: Qualitative study of patients’ perspectives. British Journal of General Practice, 54, 183-188.[ISI][Medline] [Order article via Infotrieve]
  • Peel, E., Parry, O., Douglas, M., & Lawton, J. (2004b). Diagnosis of type 2 diabetes: A qualitative analysis of patients’ emotional reactions and views about information provision. Patient Education & Counseling, 53, 269-275.
  • Peel, E., Parry, O., Douglas, M., & Lawton, J. (2005). Taking the biscuit?: A discursive approach to managing diet in type 2 diabetes. Journal of Health Psychology, 10(6), 779-791.[Abstract]
  • Potter, J. (1996). Representing reality: Discourse, rhetoric and social construction. London: Sage.
  • Ribbens, J. (1989). Interviewing—An "unnatural situation"? Women’s Studies International Forum, 12(6), 579-592.[CrossRef]
  • Richards, H., & Emslie, C. (2000). The "doctor" or the "girl from the University"? Considering the influence of professional roles on qualitative interviewing. Family Practice, 17(1), 71-75.[Abstract/Free Full Text]
  • Sanchez, S., Salazar, G., Tijero, M., & Diaz, S. (2001). Informed consent procedures: Responsibilities of researchers in developing countries. Bioethics, 15(5/6), 398-412.[CrossRef][ISI][Medline] [Order article via Infotrieve]
  • Shamai, M. (2003). Therapeutic effects of qualitative research: Reconstructing the experience of treatment as a by-product of qualitative evaluation. Social Service Review, 77(3), 455-467.[CrossRef]
  • Strauss, R. P., Sengupta, S., Kegeles, S., McLellan, E., Metzger, D., Eyre, S., et al. (2001). Willingness to volunteer in future preventive HIV vaccine trials: Issues and perspectives from three US communities. Journal of Acquired Immune Deficiency Syndromes, 26(1), 63-71.
  • Tully, J., Ninis, N., Booy, R., & Viner, R. (2000). The new system of review by multicentre research ethics committees: Prospective study. BMJ, 320, 1179-1182.[Abstract/Free Full Text]
  • Warburton, J., & Dyer, M. (2004). Older volunteers participating in a university research registry: Helping others my age. Educational Gerontology, 30(5), 367-381.[CrossRef]
  • Wilcox, M., & Schroer, S. (1994). The perspective of patients with vascular disease on participation in clinical trials. Journal of Vascular Nursing, 12(4), 112-116.
  • Willig, C. (2004). Discourse analysis and health psychology. In M. Murray (Ed.), Critical health psychology (pp. 155-169). Basingstoke, UK: Palgrave Macmillan.

Add to CiteULike CiteULike   Add to Connotea Connotea   Add to Del.icio.us Del.icio.us   Add to Digg Digg   Add to Reddit Reddit   Add to Technorati Technorati    What's this?


This article has been cited by other articles:


Home page
Qual Health ResHome page
S. M. Carter, C. F. C. Jordens, C. McGrath, and M. Little
You Have to Make Something of All That Rubbish, Do You? An Empirical Investigation of the Social Process of Qualitative Research
Qual Health Res, September 1, 2008; 18(9): 1264 - 1276.
[Abstract] [PDF]


Home page
J. Med. EthicsHome page
G Helgesson and U Swartling
Views on data use, confidentiality and consent in a predictive screening involving children
J. Med. Ethics, March 1, 2008; 34(3): 206 - 209.
[Abstract] [Full Text] [PDF]


Home page
BMJHome page
E. Peel, M. Douglas, and J. Lawton
Self monitoring of blood glucose in type 2 diabetes: longitudinal qualitative study of patients' perspectives
BMJ, September 8, 2007; 335(7618): 493 - 493.
[Abstract] [Full Text] [PDF]


This Article
Right arrow Abstract Freely available
Right arrow Free Full Text (Free PDF) Free
Right arrow Alert me when this article is cited
Right arrow Alert me if a correction is posted
Right arrow Citation Map
Services
Right arrow Email this article to a friend
Right arrow Similar articles in this journal
Right arrow Similar articles in ISI Web of Science
Right arrow Similar articles in PubMed
Right arrow Alert me to new issues of the journal
Right arrow Add to Saved Citations
Right arrow Download to citation manager
Right arrowRequest Permissions
Right arrow Request Reprints
Right arrow Add to My Marked Citations
Citing Articles
Right arrow Citing Articles via HighWire
Right arrow Citing Articles via ISI Web of Science (2)
Right arrow Citing Articles via Google Scholar
Google Scholar
Right arrow Articles by Peel, E.
Right arrow Articles by Lawton, J.
Right arrow Search for Related Content
PubMed
Right arrow PubMed Citation
Right arrow Articles by Peel, E.
Right arrow Articles by Lawton, J.
Social Bookmarking
 Add to CiteULike   Add to Connotea   Add to Del.icio.us   Add to Digg   Add to Reddit   Add to Technorati  
What's this?